The façade of the Town Hall and the Mare Nostrum roundabout will be dyed red on the night of September 7 to raise awareness of Duchenne muscular dystrophy, a rare disease that affects one in every 5,000 children.
The Málaga municipality of Fuengirola will join the World Duchenne Awareness Day on September 7 by illuminating the façade of the Town Hall and the Mare Nostrum roundabout in red. The initiative, presented this Friday by the councillor for Families, Equality and Social Welfare, Cristina Bornao, and the representative of Duchenne Parent Project Fuengirola-Mijas, Sara Montagut, aims to raise public awareness about this rare condition.
Bornao explained that the council maintains a close collaboration with social groups in the municipality and is once again joining the association to raise awareness of the disease. Montagut, for her part, thanked the Town Hall for its support in commemorating International Duchenne and Becker Day and reminded that the condition affects around 1,100 children in Spain.
“From the Department of Families, Equality and Social Welfare, we maintain a close collaboration with the social groups in our municipality and support initiatives aimed at raising awareness and sensitising society about different realities,” Bornao stated.
Duchenne muscular dystrophy is a rare genetic disease that primarily affects boys and causes a progressive loss of muscle strength. According to Montagut, it is estimated that around 20,000 new cases are registered worldwide each year and that the disease affects approximately one in every 5,000 children.
The Duchenne Parent Project is made up of parents and relatives of affected children and operates at an international level. In Spain, it has local groups such as those in Fuengirola and Mijas, formed by volunteers who work to support families and raise awareness of the disease.
On the night of September 7, both the Town Hall façade and the Mare Nostrum roundabout will be illuminated in red, the representative colour of Duchenne. Montagut has invited residents to come to these locations and take a photograph to help spread the campaign.
“We invite all residents to join us that night, come to these points and take a photograph with us to help raise awareness of this disease and the families living with it,” Montagut encouraged.
Additionally, the association has organised a charity paddle tournament from October 23 to 25 at the Raquetas de Mijas Paddle Club. The proceeds will go towards research and treatment for affected children. Those wanting more information can check the entity's social media profiles or the official page of Duchenne Parent Project Spain.
You may also like
